Saturday, February 19, 2011

McDonald's party

 The best part of sending our kids to a special school for autistic kids, in my opinion, is meeting the other parents.  Whenever there's a school recital or a bring-your-parents-to-school day, we think nothing of seeing a kid (ours or someone else's) having a massive meltdown, or stimming, or running away.  We all have a big laugh about it or ignore it completely, as the situation warrants.  No awkward silences, nosey questions or bewildered misunderstandings:  we all understand autism enough to deal with the usual autistic things.  Everything seems so normal here.

The best example of our mutual understanding was around this time last year, when Gaston went to a classmate's birthday party.  Our first classroom birthday party, it was to be on a Saturday afternoon at a McDonald's near the school.  The little girl having the party, it turns out, is a twin.  And her twin, also autistic, wasn't in Gaston's class, so his class also got invited to the party.  There were over a dozen autistic kids at this party!

At one point, I noticed the McDonald's staff members trying to engage the kids in some sort of pin-the-tail-on-the-donkey game, and getting absolutely no love for their effort.  The kids were just playing in the children's play area, melting down when they were given the wrong colour of balloon (or maybe that was just Gaston) and eating ice cream cake.  Basically just acting like autistic kids.

I approached the birthday twins' mother and jokingly said "Look at those poor teenagers trying to get the kids to play an organised game.  Didn't you tell them the kids are autistic?  Ha ha."  She gave me a conspiratorial smile and said "No, I didn't."  We both burst out laughing.

Saturday, February 5, 2011

Western Autistic School

The school logo is a student's drawing of a Melbourne tram


The school year has just started.  If that sounds a little bit strange to my northern hemisphere readers, remember that it's summer over here in Melbourne, Australia.  The summer holiday between school years starts just before Christmas and ends around the start of February.  This year, school started on Friday 4 February 2011.  And no, it's not customary to start the school year on a Friday:  we all think it's weird, too.

I have previously blogged about our attempts to send our kids to regular preschools.  It only seems fitting, at the start of the school year, to talk about Western Autistic School, the public school which caters to the autistic school-starters in the western suburbs of Melbourne (website is here: http://www.westernautisticschool.vic.edu.au/).

Autism is perfectly normal here:  you would think nothing of seeing a kid stimming, or melting down, or having his hand held tightly by a staff member out of fear he might run away.  There's a trampoline in the gym.  There are electric hand dryers in each bathroom, because many autistic kids are scared to death of noisy hand dryers and they need to become accustomed to the infernal machines.  Bike riding lessons and toilet-training are often a big part of the first year's curriculum.  There is not one big schoolyard where a kid might get lost in a crowd:  instead, there are multiple small playgrounds where small groups can be closely supervised.

The classes are small:  any classroom will have 6 to 8 students (usually just six), two teachers and one teacher's aide.  That's a staff-to-student ratio of 1 to 3!  There are onsite speech therapists, occupational therapists and psychologists, all working full-time.  Some of the staff have been working with autistic kids for decades.

With so many staff members on hand, the school spends a lot of time matching students to the right classroom.  Little Johnny screams all the time and little Timmy has a tantrum every time someone screams?  It might be best not to put them both in the same classroom, then.  That might seem like common sense, but it's not the sort of problem which is likely to be diagnosed and fixed in a traditional school environment with 1 to 20+ staff-to-student ratio.

The place is a like an Alcatraz island for autistic kids:  not even my two little Houdinis could escape it.  The knobs on the doors are so high that shorter-than-average adults struggle to reach them.  To get in and out of the schoolyard, one needs to pass through a veritable labyrinth of gates, again with the latches so high that no child could reach them.

Shopping and cooking are part of the weekly curriculum.  My first instinct about the cooking lessons was to dismiss them as a waste of time:  they are "soft skills" which the kids would eventually pick up anyway.  But the teachers work on language throughout the whole lesson.  Plus they have used the lessons to help Rémi overcome his squeamishness about certain textures.  They've also used them to help Gaston try foods he wouldn't normally touch with a ten foot pole (crazy foreign foods, such as rice).

In fact, everything which is done in this school seems to revolve around language development.  Even lunch and recess are opportunities to learn language and social skills.  With such a high staff to student ratio, there is always someone watching them and helping them learn how to play appropriately.  We've heard reports of Gaston pushing other kids—a problem which the staff addressed almost immediately.  More recently, Rémi surprised me when my friend Julie came around for a visit and he looked her square in the eye, waved and said "Hi Julie".  He definitely didn't learn that from his Mom and Dad.

The school does a lot of excursions, many of them to local parks, shopping centres and grocery stores.  The school does other educational excursions, too:  to the museum, to the zoo, to the airport.  But for the most part, the staff teach the students about everyday life:  how to behave at a mall's food court, for example.  I reckon this has had a huge part in helping my boys behave in public places.

Every child has an individual learning plan.  When Rémi went through a phase of having a meltdown every time we went to McDonald's, we told his teachers.  So they made a point of going to the local McDonald's once a week.  And, just to make us out to be liars, Rémi behaved perfectly.  The staff did eventually witness some of the bad behaviour, though, and I think they have contributed greatly to its eventual taming.  Similarly, when Gaston went through a phase of screeching every time we told him not to do something, we put our heads together with his teachers to devise a plan to overcome the problem.  We're still working on it, but he has come a long way.

The school's ultimate goal is to place every child into a regular primary school by the end of their fourth year of school.  It's not possible to place every child, but the staff is certainly trying.  Anne and I went to a parent-teacher session which was all about the eventual placement into a conventional school.  It was a real eye opener:  we would need to find a school ourselves, and not every school could cope with an autistic child (this will be the subject of a later blog).  Gaston's teachers reckon he'll be ready for placement by the end of his fourth year (he's now starting his third year).  To help him along, Gaston occasionally does some traditional classroom learning with a 1 to 20 staff to student ratio.  It's only a couple of hours each week, to get the kids accustomed to the conventional teaching style.

Years ago, when it became obvious that Gaston and Rémi would not be able to go to a conventional school, I had to get over the stigma of sending my boys  to "special school".  What made things more difficult was the fact that Melbourne adults are obsessed with schools—it's a British way of thinking, and I'm glad I didn't grow up with that sort of snobbery.  I got over it quickly and did what was right for the boys, and boy am I glad I did:   the non-stop teaching, the special facilities, the specialised staff, the personalised education plans, the regular excursions…  The combination of all these things must work.  Both my boys' language skills have developed immensely since they started school, and they've learned a lot of social skills.  They've got a long way to go if we expect them to go to a conventional school, but I have faith this school is right for them.

Saturday, January 29, 2011

House rules



The lebelinoz household is a tight ship.  If you want to be a part of this family, there are a few rules which must be observed.  No exceptions.

  1. Never, ever EVER turn the DVD player off or change the channel while the final credits are rolling.

  1. "Bedtime" is merely a suggested activity.  Once the lights are out and Mom & Dad shut the door, you're free to do whatever you want…  No matter how many times Dad comes in the room, puts you back in bed and switches the light back off.  If you happen to find someone has removed your light bulb earlier that day, then that's your bad luck.

  1. Under no circumstances must all the couch cushions remain on the couch.

  1. Before using the blue silicone oven mitt, always make sure to chase the children through the house with it, while singing the first few bars of "Mack the knife".  Failure to do so may result in persistent badgering by said children.

  1. Toast crusts go on the floor.  Not the bin.  And certainly not in the mouth.

  1. If you step away from the computer, even just for a second to get a cup of water from the kitchen sink three feet away, it is within everyone else's rights to close all your windows and apps and to take over the computer.

  1. Bookmarks must never stay in the book.  They are meant to be pulled out of the books and enjoyed on their own.

  1. "I" is "you", not "I".  For example, if you want some milk, you must never say "I want milk".  It's "You want milk".

  1. When Mom says "It's bedtime", always scream "You want milk!" in response.

  1. Under no circumstances must ice cream, yoghurt or apple sauce be eaten at the table while seated.  It is preferable to do several laps of the lounge room and do several bouncy stims on the sofa while enjoying such treats.

Friday, January 28, 2011

Guest posting at Special Happens

Gina over at Special Happens is doing a guest blog series on the subject of friendship.  It seemed appropriate to talk about my two boys as they seem to be growing up as each other's best friends.


The link is here:  http://specialhappens.com/2011/01/28/two-is-not-worse-than-one-by-alain-lebel-guest-post-for-friendships-struggles-humor-triumphs-and-angels-series/

Hon hon hon

Me to Anne while watching The Colbert Report:  "I've noticed a trend on American television where everyone makes fun of Canadians. I don't know if I like it."
Anne to me: "Welcome to my world. Hon hon hon."
You know, that was the first time in my life that I've actually heard a French person say "Hon hon hon".

Saturday, January 22, 2011

Why blog?


I started blogging because I love to write, I like the idea of keeping a diary and I honestly think sharing the difficulties of life with autistic kids helps others cope with their own.  Also, I'm a bit of a world wide web showman:  I love writing random stuff on Facebook and seeing what reactions I get.  Facebook has allowed me to express my sense of humour and to remain friends with old friends and family who I never get to see.

What I found, though, is that blogging is so much better than writing occasional random thoughts on Facebook or Twitter.  Here are some of the great side effects I found after several months of blogging:

  • When you write stuff down, you organise your thoughts.  I've already learned this through years of academia, R&D and being a general all-around Excel and database guru.  But this is the first time I tried it for my actual life (apart from a few pathetic attempts at doing a household budget).  I've thought more about how to educate the boys and maximise their language development when we're playing games.  I've researched a couple of relevant subjects, such as the Wakefield controversy and a plethora of autism books.  Writing about preschool gets me thinking about primary school, and how lucky we are to have the dedicated autistic school.  I, like many others, use writing as an excuse to research topics and wrap my head around them:  I didn't know half as much about Wakefield until I tried to explain it in my Vaccination post.

  • Sharing the experience of autism difficulties does help others:  it helps me!  I read about other people's lives with their autistic kids.  I feel so…  normal!  I'm part of an international (mainly Yank) autism community which is forever discussing integration into regular schools, community acceptance, stimming, tantrums…  All the subjects which are close to my heart.

  • I made new friends, in the form of other bloggers.  If you can call people you've never met "friends".  It's sounds strange, but I do.

  • I've learned to appreciate the kids for who they are.  I always did, but writing down some of the funny things they do, sharing it with the world, having people write "lol" in response, reading similar stories about others, all makes me realise how great they are.  And some of my favourite blogs are the ones which find the humour in living with autism.

And the #1 best side effect of blogging:  I stopped hitting my kids.

This blog started out as a log, a diary which was updated almost every day of our 2010 trip to Tasmania.  The original notes had way too much detail, most of them edited out to make the thing readable.  At some point, I'm still not sure why or when, I decided to leave in all the times I lost patience and hurt Gaston.

I found, reading back on my notes, that I had smacked Gaston five  times.  I have tried to stop before but never could.  Seeing it in writing, however, came as a complete shock to me, especially when I know it will be out there in the public domain forever, being read by friends, family and complete strangers.  The frequency of the abuse comes as the biggest surprise:  five times in one week.  Anne has lost patience and smacked each of the kids once in her life (once with Gaston and once with Rémi), and she went to sleep crying both nights.  I was apparently smacking the kids once every day or two, and never gave it too much thought even with Anne giving me an earful about it, many times.

Since the Tasmania trip, there have been no more smacks.  I've learned to be more patient.  And if I ever start my own religion (which is how I plan to fund my retirement), I will definitely replace the old Catholic-style confessionals with blogs.  They're much more effective.

Friday, January 21, 2011

"I'm not Rain Man"

I wrote this update on Facebook the other day, under the banner "Sh*t my wife says".  It got more "Likes" and comments from family than my usual witty banter.  Any thoughts as to why?
Wife: "Let's see... 170 square meters, $16/square... Alain, what's 170 times 16?"
Me: "Wtf? I'm just supposed to know that off the top of my head? I'm not Rain Man!"
Wife: "Come on!" *snaps fingers*
Me: "Okay, um, 2560".
Wife: "See, that wasn't that hard!"